moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: Blenderized Diets - Real food for real people
http://moebiussyndromemom.blogspot.com/p/blenderized-diets-real-food-for-real.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Blenderized Diets - Real food for real people. Blended Food Resource Group - http:/ www.foodfortubies.com/. Facebook page for above group - https:/ www.facebook.com/foodfortubies. Blenderized Diet group on Yahoo Groups. Homemade Blenderized Diet Handbook - not all that helpful. Http:/ youstartwithatube.blogspot.com. Our basic recipe for 5-6 feedings worth:. We are re...
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: An update, finally!
http://moebiussyndromemom.blogspot.com/2013/02/an-update-finally.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Friday, February 22, 2013. An update, finally! So I haven't posted a real update on Luke and our family in quite a while. So here it goes. Plus he has been really working, I mean like 20 minutes at a time, at standing up by himself. He is doing a pretty good job working at it too. We are pretty excited about this, obviously. One day post surgery #2:. And then she got...
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: May 2015
http://moebiussyndromemom.blogspot.com/2015_05_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Monday, May 11, 2015. Trilogy 100 vs. LTV 1150. Luke got a new vent last week, finally! We are very excited about it and think it is great. So far Luke is doing very well on the new vent. You may be asking, "Why would you want a new vent? What are the benefits? Please feel free to ask questions and share your Trilogy and LTV stories in the comments below!
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: November 2012
http://moebiussyndromemom.blogspot.com/2012_11_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Wednesday, November 28, 2012. Luke is doing awesome! So I never seem to find the time to sit down and write but here it goes. Luke is doing awesome! He is doing new things and other things better every day. What has he been doing? He stood up by himself this week! He is using more words with his speaking program on his iPad. He is walking better in his walker. We are...
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: January 2013
http://moebiussyndromemom.blogspot.com/2013_01_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Saturday, January 26, 2013. So all the overwhelming things caught up to me today. And what was the thing that made it all come crashing down in my mind? At first I only got some of it. There is an explanation for each of her items down lower. But the main point is, FORWARD! Thursday, January 24, 2013. Moebius Syndrome Awareness Day 2013. Today is Moebius Syndrome Awa...
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: We have a kindergartener!
http://moebiussyndromemom.blogspot.com/2014/10/we-have-kindergartener.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Tuesday, October 7, 2014. We have a kindergartener! The leaves are beautiful reds mainly with oranges, yellows, and maroons mixed in. It is relaxing and calming to look out on the beautiful fall trees. Fall is my favorite time of the year and I am enjoying it. Up until about a week ago it was beautiful outside so we got to enjoy quite a bit of it. Smart Apps For Kids.
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: February 2013
http://moebiussyndromemom.blogspot.com/2013_02_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Friday, February 22, 2013. An update, finally! So I haven't posted a real update on Luke and our family in quite a while. So here it goes. Plus he has been really working, I mean like 20 minutes at a time, at standing up by himself. He is doing a pretty good job working at it too. We are pretty excited about this, obviously. One day post surgery #2:. And then she got...
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: October 2012
http://moebiussyndromemom.blogspot.com/2012_10_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Sunday, October 7, 2012. Two weeks ago Luke went to school for three days! He did great. He walked in his walker, a lot, which was great! Now what about Hannah during this time? Well off to bed for me. Hannah loves going to V's house. I had a great Thirty-One party. Kevin's parents were up for a great visit this weekend. We have a house to live in. Smart Apps For Kids.
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: May 2013
http://moebiussyndromemom.blogspot.com/2013_05_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Monday, May 6, 2013. Hope for a possibly trach free Luke. It seems I update only when I have nights with no nurses. Probably it is the only time I feel I can squeeze it in. I should probably be working on my meal plan and shopping list right now but there are still hours to do that (more about that later). So how did it go. Well we got to a room and it was huge!
moebiussyndromemom.blogspot.com
Moebius Syndrome and Our Family: October 2014
http://moebiussyndromemom.blogspot.com/2014_10_01_archive.html
Moebius Syndrome and Our Family. Sharing my story for the benefit of others. I have benefited from others' stories so I want to share mine. Tuesday, October 7, 2014. We have a kindergartener! The leaves are beautiful reds mainly with oranges, yellows, and maroons mixed in. It is relaxing and calming to look out on the beautiful fall trees. Fall is my favorite time of the year and I am enjoying it. Up until about a week ago it was beautiful outside so we got to enjoy quite a bit of it. Smart Apps For Kids.